Patient Stories

Endometriosis is isolating. Patient stories can reduce that isolation and help others recognize their own experience. We publish stories only with explicit written consent. Individual results vary — a story describes one patient's journey and is not a predictor of outcome for anyone else.

How stories are collected

Patients contact the editorial team and indicate willingness to share their experience.
An editor and the patient shape the story together in plain language.
The patient reviews and approves the final wording, images, and any identifying details.
Explicit written consent is required before publication.
Patients may edit or withdraw their story at any time.

What we do not do

We do not pay for stories.
We do not publish stories that make treatment guarantees.
We do not modify medical outcomes for marketing purposes.
We do not publish identifiable details without consent — see our Privacy Notice.

How to read patient stories responsibly

Each patient's disease location, prior treatment, anatomy, and goals are different. Two patients with the same MRI findings may have different symptoms, respond differently to surgery, or have very different fertility outcomes. Stories are shared to illustrate care pathways and reduce isolation — not to predict what will happen for you. See our Treatment Results Disclaimer.

Story categories

Stories will be organized under the following categories once patients have consented to publication.

Diagnosis after years of symptoms
Coming soon
Patients who spent years being told their pain was normal, or who received unrelated diagnoses, before endometriosis was confirmed.
Failed prior treatment
Coming soon
Patients whose first surgery relied on ablation, missed deep disease, or was performed without a multidisciplinary team.
Bowel endometriosis
Coming soon
Patients who required colorectal collaboration for shaving, disc excision, or segmental resection.
Bladder or ureter endometriosis
Coming soon
Patients with silent ureteral disease, hydronephrosis, or bladder involvement requiring urology.
Fertility journey
Coming soon
Patients navigating the sequence of surgery, ovarian reserve testing, IVF, or fertility preservation.
Robotic excision
Coming soon
Patients whose surgical plan used robotic assistance for complex deep disease.
Travel to Tijuana experience
Coming soon
Patients who traveled for coordinated cross-border care and want to share what the pathway was like.

About patient stories

How are patient stories collected?

Stories are shared only with explicit written consent. Patients can review, edit, or withdraw their story at any time. We do not pay for stories and we do not publish stories that make treatment guarantees.

Do stories predict my results?

No. Each patient's disease, anatomy, prior treatment, and goals are different. Stories are shared to reduce isolation and illustrate care pathways, not to predict outcomes for any other patient.

Can I share my own story?

Yes. Contact an advisor. Nothing is published without your explicit written consent, and identifying details are handled according to our privacy notice.

Would you like to share your story?

Contact an advisor. Nothing is published without your explicit written consent, and you retain the right to edit or withdraw your story at any time.

Speak With an Endometriosis Advisor Upload Your Records for Review

Medical review notice

This page was written for patient education and reviewed for medical accuracy by a member of the EndoHelp Medical Review Board.

Reviewed by: Dr. William Kondo, MD, MHSc
Specialty: Medical Reviewer — Endometriosis Excision Surgery & Minimally Invasive Gynecologic Surgery
Content reviewed: Endometriosis diagnosis, excision surgery, patient navigation.
Last reviewed: July 2026

Selected sources

Full reviewer profile · Medical review policy · Editorial policy · References & sources · Network transparency

This content is educational and is not a substitute for professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional regarding your individual condition.